sat . [JUDE UPDATE]: THE STRENGTH IN SLOWING DOWN – FINDING PEACE IN THE MIDST OF THE BATTLE 🧡🙏
[JUDE UPDATE]: THE STRENGTH IN SLOWING DOWN – FINDING PEACE IN THE MIDST OF THE BATTLE 🧡🙏
Hi friends and family,
In the journey of recovery, we often want to race toward the finish line. We want to see the milestones fly by and leave the hospital walls behind us. But today, Jude’s journey reminded us that sometimes, the bravest thing you can do is slow down.
A Day of Hard Hurdles Today has been a bit of a mountain for our sweet boy. Jude has been experiencing some neuro agitation, which has been tough to watch. We believe his nervous system is having a difficult time as the medical team works on weaning him off some of the heavy medication regimens he’s been on.
When you add the lingering fatigue from his recent fight with the flu, it’s a lot for his little body to process. He’s been more irritable and restless, and as parents, our hearts ache to see him struggle to find comfort.
Listening to His Body After talking with the team, we’ve decided to take things a little slower for him. We aren’t rushing the process. We are giving Jude the “grace of time” to let his system settle and adjust at its own pace. Recovery isn’t a straight line—it’s a series of peaks and valleys, and today we are simply navigating a valley with as much patience as we can muster.
Our Hopes for the Next 24 Hours Despite the agitation, we are holding onto hope for a better tomorrow. Our focus right now is twofold: ✨ Rest: We are praying for a deep, restorative, and peaceful night of sleep for Jude. We need his brain and body to quiet down so he can recharge. ✨ Breathing: If he can get enough rest tonight, our goal for tomorrow is to “inch down” on his respiratory support. Every small step toward breathing more on his own is a massive victory for us.
A Community of Strength We say this often, but we truly mean it: We could not do this without you. When we feel weary, your prayers carry us. When Jude is restless, we imagine him being covered in a blanket of the love you send from all corners of the world.
Thank you for continuing to stand in the gap for our boy. Thank you for being his prayer warriors when he is too tired to fight for himself.
Please keep lifting him up tonight:
- Pray for his nervous system to be calmed.
- Pray for the irritability to fade and be replaced by peace.
- Pray for his lungs to grow stronger with every breath.
We are so incredibly grateful for this “NEGU” family. We see your messages, we feel your prayers, and we love you all. ❤️
#JudeStrong #NeverEverGiveUp #NEGU #PrayerWarriors #ChildhoodCancerWarrior #SlowAndSteady #FaithOverFear
