As parents, you have a mental checklist of milestones you can’t wait to reach. You picture the giggles, the flashlights, and the bedtime stories inside their very first blanket fort. You imagine a place of play.
You never imagine building that fort inside a hospital bed.
Today, we are living a very different version of that milestone. Jax is struggling incredibly hard with ICU delirium. It is a beast that we are trying desperately to tame. The lights, the sounds, the constant motion of the ICU—it’s all becoming too much for his processing. Our poor boy has hardly slept, and his exhaustion is heartbreaking to witness.
So, we improvised. We built him a fort.
We are trying to block out the world. We are trying to silence the beeps and dim the harsh fluorescent glare to give his brain a chance to reset. It’s a desperate attempt to cut out the stimulation and buy him a moment of peace.
We are asking—begging, really—for you to storm heaven with extra prayers right now. Pray that this little shelter works. Pray that the fog of delirium lifts. Pray that inside this fort, Jax finally finds the quiet he needs to fall into a deep, healing sleep.
HEADLINE: Fighting for Peace in the Chaos: Jax’s Battle with Delirium
There is a unique kind of helplessness in watching your child so desperate for rest, yet unable to find it.
Jax is currently in the thick of ICU delirium, and it is proving to be one of the hardest hurdles yet. His mind is racing, his body is exhausted, and he has barely slept. The overstimulation of the hospital is taking its toll, and we are trying to figure out the puzzle of how to bring him back to a place of calm.
Today, we did the only thing we could think of to help: We built a wall between him and the chaos.
We constructed a blanket fort around his bed. It’s not for play; it’s for survival. It’s an attempt to create a dark, quiet womb-like space where the sensory overload of the ICU can’t reach him.
We need your prayers now more than ever. Please pray for his little nervous system to settle. Pray that the fear and confusion wash away. We are holding onto hope that tonight, inside his little fort, peace will finally win.
HEADLINE: Shielding Jax: A Plea for Rest
If love could cure delirium, Jax would be sleeping soundly right now. But since love alone isn’t enough, we are using blankets.
Jax is having a really rough time. The ICU delirium has set in, and he is struggling to distinguish between rest and reality. He hasn’t slept, and we can see the toll it’s taking on his fighting spirit.
To help him, we’ve transformed his bed into a fortress. We’ve draped blankets to block out the stimulation, trying to create a tiny sanctuary of darkness in a room that never truly turns off. It is not the picture of a “first blanket fort” anyone wants to see, but right now, it is our best hope for his comfort.
We are asking you to join us in this fort spiritually. Please surround Jax with your prayers. Ask God to calm his mind, soothe his agitation, and grant him the heavy, restorative sleep he has been denied for too long.
We are tired, but we are not giving up.
