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LDL. Update on Jude: 4 A.M. Breathing Crisis Leads to Emergency Ventilation as Family Prays for a Breakthrough

Jude’s family is asking for urgent prayers after a frightening overnight turn left doctors working to get air moving through his lungs.

According to the latest update, around 4:00 a.m., Jude’s lungs stopped moving air, and his team had to ventilate him using a full face mask. Even with the mask in place, medical staff reportedly struggled to push air effectively because the secretions in Jude’s lungs were described as extremely thick.

Deep suctioning was attempted, but the family said it did not bring the relief everyone hoped for. Doctors then initiated a continuous albuterol drip in an effort to keep Jude’s airways open and support his breathing.

Waiting on Pulmonology — Praying for an Off-Label Option

The family shared that they are now waiting on pulmonology and praying for approval of a medication typically used in cystic fibrosis, requested off-label, that may help break up the heavy buildup in Jude’s lungs.

They emphasized that Jude does not have cystic fibrosis, but that RCDP affects the lungs in ways that can look similar—while also being so rare that the usual range of treatment options simply isn’t there.

Because of that rarity, the family says they are asking for something that goes beyond standard protocols: open doors, creative solutions, and mercy—the kind of help they believe medicine alone cannot always provide.

A Small Answered Prayer: Potassium Stabilized

Amid the crisis, one piece of good news arrived.

Jude’s potassium level had dropped dangerously low, but it has now stabilized, which the family called a small but meaningful answered prayer in the middle of a long night.

“He’s Scared”: The Human Moment Behind the Machines

Hannah shared that Jude has been deeply upset—crying real tears—and she believes he is frightened by the full face mask. The mask is large and bulky, and she feels Jude may experience it as being trapped, which only adds to the stress and fear he’s already carrying.

The family is asking for prayers not only for Jude’s lungs, but for peace and comfort—that he would feel safe, protected, and soothed even while surrounded by equipment he doesn’t understand.

What the Family Is Asking For Now

As Jude remains in a critical season, his loved ones are asking supporters to pray specifically for:

  • Relief in his lungs and a way to break up and clear thick secretions
  • Wisdom and clarity for his medical team
  • Approval and effectiveness of any medication that can safely help
  • Peace and comfort for Jude as he struggles with the mask
  • Continued stability in his labs and overall condition

For now, the message from Jude’s family is simple: please keep praying—for healing, strength, and mercy through this moment-by-moment fight. 🙏🤍

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