LDL. Seventeen-Year-Old Phoenix Griffin Faces Life with Rare Behcet’s Disease

Phoenix Griffin, 17, of Dallas, Georgia, is just like many teens his age — he wants to hang out with friends, return to school, and enjoy the life he deserves. But Phoenix is facing challenges far beyond the usual teenage struggles.
Since birth, Phoenix has battled health issues, and in March of this year, he received an official diagnosis of Behcet’s Disease, a rare, chronic autoimmune condition. This disease causes inflammation of blood vessels, leading to a wide range of symptoms, including:
- Painful mouth sores and red lumps on the legs
- Eye inflammation
- Joint pain and swelling in knees, ankles, elbows, and wrists
- Blood vessel problems, including swelling, redness, and blood clots
- Digestive issues, such as stomach pain, diarrhea, nausea, vomiting, or blood in stool
- Nervous system symptoms, including headaches, poor balance, cognitive difficulties, and in severe cases, strokes
As if that weren’t enough, Phoenix has also been diagnosed with Factor VII bleeding, a rare condition that prevents his blood from clotting properly.
Phoenix and his family — parents Phillip and Telisa and younger brother Skyler — take life one day at a time, hoping doctors can manage his symptoms and improve his quality of life. There is currently no cure for Behcet’s Disease, meaning Phoenix may face these challenges for years to come.
The family hopes that sharing Phoenix’s story raises awareness about Behcet’s Disease, inspires support, and brings attention to the need for research and treatments that could someday lead to a cure.
Through community support, prayers, and encouragement, Phoenix can continue facing life’s daily challenges with hope and strength.
