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LD. A Tiny Heart, A Powerful Fight: Harrison’s Journey Through Congenital Heart Disease. LD

At 20 weeks pregnant, Hannah and her partner Deen were eagerly anticipating the arrival of their baby boy. Like many expectant parents, they imagined first cuddles, sleepless nights, and a future filled with ordinary milestones. That vision shifted dramatically during a routine scan, when doctors delivered news no parent is prepared to hear: their unborn son, Harrison, had a serious heart condition.

Specialists soon confirmed that Harrison had multiple congenital heart defects, including ventricular septal defects (VSDs) and an atrial septal defect (ASD). These conditions meant that holes in his heart were affecting how blood flowed through his body. The diagnosis brought fear, uncertainty, and countless questions. Hannah and Deen found themselves navigating a world of medical terminology, hospital appointments, and anxious waiting.

For months, the pregnancy was overshadowed by worry. One of the biggest unknowns was whether Harrison’s heart condition was linked to a genetic disorder. When the results of his genetic testing finally came back clear, it brought a much-needed moment of relief. It didn’t erase the challenges ahead, but it gave the family hope and reassurance that they could face what was coming.

Harrison’s birth was both joyful and daunting. At first, there were signs of cautious optimism, but it didn’t last long. His condition began to worsen, leading to repeated hospital visits and close monitoring by specialists. Simple things that most babies breeze through became major concerns. Feeding, breathing, and weight gain were all closely watched, as his heart struggled to keep up with the demands of his growing body.

By the time Harrison was six months old, doctors agreed that open-heart surgery was unavoidable. For Hannah and Deen, the decision was terrifying but necessary. Handing their baby over to a surgical team was one of the hardest moments of their lives, filled with fear, prayer, and silent hope.

The surgery, however, was a turning point. Surgeons successfully repaired the defects, and against expectations, Harrison’s recovery was quicker and smoother than anticipated. Each small improvement — a stronger cry, steadier breathing, brighter eyes — felt like a victory. The overwhelming fear that had defined so many months slowly gave way to relief and gratitude.

Today, with ongoing support from organizations like Tiny Tickers and a dedicated medical team, Harrison is thriving. While his heart journey isn’t completely over and follow-up care remains part of his life, he continues to grow stronger every day.

Harrison’s story is a powerful reminder of resilience — not just of a tiny heart that refused to give up, but of parents who stood firm through fear, uncertainty, and hope. It is a testament to modern medicine, compassionate care, and the incredible strength found in even the smallest fighters.

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