This is the type of mask Will will be fitted for tomorrow as he takes the next step in his fight.
We got the call this morning and we’re scheduled for tomorrow at 7:30am. We will head back to UAB so they can make his radiation mask and target the spot on his jaw with precision. Once the mold is made, we’ll be on standby and waiting for the call to begin treatment.
For a long time, Will said he would never radiate his jaw due to possibilities of becoming blind or deaf, But after watching his tumor markers rise, fear changed his mind. He told us he wants to know he did everything possible for a chance to survive. From the beginning, we’ve supported his decisions. This is his fight and he continues to lead the way with a courage most of us adults don’t have.
Lately he says the jaw spot feels different. Random pain that comes and goes. He’s also had a slight cough. In the normal world, these things wouldn’t mean much. In the cancer world, every symptom feels like a warning siren to me and Jason.
Will loves scary movies.
Right now, I can’t watch them… because living with cancer feels like you’re the one trapped inside the film.
In horror movies, the mask is what you fear. Tomorrow, it’s what Will will have made in hopes it helps keep him alive.
In horror films, its the tense music that never stops, The silence that feels too quiet and The constant feeling that something is coming even when you can’t see it…. living your life bracing for the jump scare is exactly how I currently relate to as my life.
But tonight, in the middle of all that fear, Charlie came home smiling after her first day of cheer tryouts and said she felt like she did good and for a moment… happiness was louder than fear.
Tomorrow we walk back into the movie.
Still scared but fighting.
Please keep Will and Charlie in your prayers.
We are believing for a miraculous healing in our home.
