Today has been a really hard day for Jazzy. She woke up to her hair falling out on her pillow and decided she wants to shave the rest off. It breaks my heart because she’s only 9, and every time it starts to grow back, it falls out again. We know it’s “just hair” and that it will grow back, but to her, it’s so much more — and it hurts to watch her go through this over and over.
I was also upset during her IV placement. Her platelets are low, and she kept saying her arm was being squeezed too tightly. We tried to reassure her, but afterward it was clear she was held much tighter than necessary. As a parent, it’s incredibly hard to see her already dealing with so much pain and then experience something that could have been more gentle.
This journey is exhausting and emotional. I needed a second biopsy and I even had to reschedule it this week because everything right now revolves around making sure she’s okay. I pray every day that Jazzy beats this and gets to live the normal, healthy childhood she deserves.
Today we’re taking it slow before our 12-hour drive tomorrow — maybe getting some fresh air since it’s sunny and 60 degrees. Even through all of this, she still finds a way to smile. Her strength amazes me every single day. She is truly my hero. 
Please keep Jazzy in your prayer 
