Update! Miller had a pulmonary function test and saw his pulmonologist today. Since starting the ECP treatment, his lungs have stabilized!!! This is huge. Although he is still itching, it does seem to be more manageable? I guess that’s the right word. He is on IV (eclipse) as well as several oral medications that seem to be at least starting to make a difference. Because of the condition of his lungs, we will continue ECP because of the benefits they are already seeing.
Please praise with us! We needed this win, especially Miller, to #keepgoing
We will pray for continued healing in his lungs! 
He is so excited about getting an Airbnb this week for Fall break! Dad is bringing the dogs tomorrow along with the girls and papa JJ.
We hope to make precious memories with our sweet family. 
If you’d like to help us make Fall break spectacular, my Venmo is MrsMirandaGriffith
Thank you for continuing to hold us up! #ButGod#keepgoing
#mightyMiller
Thank you for the awesome OU hat from K Club
BOOMER SOONER, always! 
