SAT. An update tonight on Mavryck — the sweet little boy whose fight against a rare, degenerative genetic disease has touched so many hearts.

An update tonight on Mavryck — the sweet little boy whose fight against a rare, degenerative genetic disease has touched so many hearts.

His mother reached out with fears no parent should have to carry.

Months ago, Mavryck’s family made an impossible decision: to move forward with a bone marrow transplant, donated by his brave 8-year-old sister. They knew it wasn’t a cure. But they hoped it might slow the disease that has been steadily attacking his brain and body.

For a while, it felt like it might be working.

Now, they’re back at Arkansas Children’s Hospital.

Yesterday, Mav began having seizure-like activity and was directly admitted. He’s currently on a 48-hour EEG so doctors can closely monitor his brain. With new signs of decline — abilities he still had in December that are now gone — physicians have ordered another MRI.

The family was warned this could happen. They understood the risks.
But they prayed the transplant would buy them more time.

Instead, they’re facing another stretch of uncertainty.

Through it all, Mavryck keeps fighting.

Tonight, his family is asking for prayers — that the MRI brings answers, that the seizures can be controlled, and that the transplant is still doing what it was meant to do.

As his parents wait for the next round of results, one question lingers:

What would you want them to hear tonight?