Today was a grueling day, but it was also a day that revealed the immense character of a young fighter.
Miller faced a marathon of appointments with a multidisciplinary team at Texas Children’s Hospital as part of his evaluation for a lung transplant. From working with Occupational Therapy to engaging in deep discussions about his medical history and progressive lung disease, Miller navigated heavy, grown-up conversations with a level of maturity and grace that left everyone in awe.
Advocacy and Vulnerability
“I spent some time sitting quietly in my corner of the room today, just absolutely beaming with pride as I listened to him,” his mother shared. She described watching her son advocate for himself—politely, thoughtfully, and respectfully.
Despite the isolating nature of this journey, Miller remains open and vulnerable. When asked what matters most to him—what drives him to keep fighting—he repeatedly brings up his family: his little brother, his sisters, and his beloved dog.
Signs of Hope and Continuity
The decision to come to Texas Children’s feels increasingly like the right one. In a surreal moment of connection, the family discovered a photo hanging in the hospital of Miller throwing out the first pitch at an Astros game in the summer of 2024—a poignant reminder of his journey within these walls.
Furthermore, the continuity of care provides a new level of reassurance. The bone marrow team has stepped in to closely monitor his chronic GVHD and issues related to his previous transplant, working in tandem with pulmonology.
Moments of Joy
Amidst the serious evaluations, there was a bright spot: meeting Melman, the precious PICU therapy dog. Though, Miller jokingly insists this stays a secret, as he fears his dog at home, Frankie, would be very upset by the “betrayal.”
The family is holding onto the belief that this is just another chapter in Miller’s story and that bigger things lie ahead. They are asking for fervent prayers—not just for his health, but that Miller begins to believe in himself again, letting faith conquer fear as he faces this fight.
Gợi ý Caption Mạng Xã hội (Social Media)
Tiếng Việt: Hôm nay, Miller đã chứng minh mình là một “chiến binh” thực thụ. Đối diện với những đánh giá y tế nặng nề về ghép phổi, con đã xử lý mọi thứ bằng sự trưởng thành đáng kinh ngạc. Động lực lớn nhất của con lúc này chính là gia đình và chú chó cưng ở nhà. Một chi tiết thật kỳ diệu: Bức ảnh con ném bóng tại trận Astros 2024 đang treo ngay tại bệnh viện này! Đó như một dấu hiệu cho thấy chúng tôi đang ở đúng nơi. Xin hãy tiếp tục cầu nguyện để Miller tìm lại niềm tin vào bản thân. Và suỵt… đừng nói với Frankie là Miller đã làm quen với chú chó trị liệu Melman nhé! 🤫🐶 #MightyMiller #KeepGoing #FaithOverFear
English: Today was a heavy day, but Miller handled it with incredible grace. Facing tough conversations about lung transplants, he advocated for himself beautifully. His motivation? His little brother, sisters, and his dog. In a surreal twist, we found a photo of Miller from the 2024 Astros game hanging right here in the hospital. It feels like we are exactly where we need to be. Please pray that Miller starts to believe in himself again. And shhh… don’t tell Frankie that Miller made friends with Melman, the therapy dog! 🤫🐶 #ButGod #MightyMiller #TexasChildrens
