2S. Jude’s Seizures Have Stopped — But a Resistant Infection and Fragile Lungs Mean the Fight Isn’t Over
After an exhausting and terrifying stretch in the ICU, Jude’s family shared the update they’ve been begging for:
Jude’s seizures have stopped.
They said the seizures finally subsided only after multiple rescue interventions, including three doses of Diastat, a significant dose of morphine, two doses of IV Keppra, and Toradol. His temperature has normalized, and while he needed several IV rescue medications to get there, Jude is now stabilized and finally resting.
His parents wrote that nothing can prepare you to witness your child going through something like this — and they’re asking supporters not to stop praying, for Jude and for their family as they process the trauma of the night.
A New Concern: Pseudomonas Is Back — and It’s Resistant
Alongside the relief came a hard new concern.
The family shared that tests confirmed Jude has pseudomonas again, and the culture sensitivities show it is resistant to the antibiotics he’s usually treated with. They are bringing in Dr. Walker, Jude’s urologist, to help guide next steps. The family is praying this infection can be treated quickly and effectively — and that it won’t spread to his kidneys or complicate existing kidney issues.
Lungs Still Unstable — ICU Ventilator Needed Longer
There was a small bright spot: Jude’s chest X-ray looks a little better.
But clinically, he is still sounding crackly and wheezy, and the ICU doctor overseeing his care believes Jude will likely need to remain on the ICU ventilator longer.
His care team and respiratory therapist also explained something important: even if Jude gets closer to his “home ventilator” settings, the ICU ventilator provides more responsive, automatic support when his breathing effort and pressure needs change — something a home ventilator can’t match in the same way. Right now, they’re focusing on getting his lungs clearer and more stable before making bigger moves.
Feeds Restarting Slowly to Reduce Aspiration Risk
The team is planning to restart Jude’s formula today — but very slowly.
They’ll begin at 5 mL an hour (his normal rate is 105 mL an hour) to reduce the risk of aspiration if he doesn’t tolerate the feeds well. It’s a cautious step — but for families in critical care, cautious is often exactly what keeps a child safe.
What the Family Is Asking for Prayer Over
Jude’s loved ones shared clear prayer points as they continue this fight:
Please pray for wisdom and success in treating the resistant pseudomonas, protection for his kidneys and kidney stones, and that the infection does not spread. Pray that his mucus will loosen and clear from his lungs, that he’ll be protected from any new sickness or bacteria, and that he will tolerate feeds as they restart.
They are also asking for stronger lungs and improved breathing, no breakthrough seizures, wisdom for neurology in managing his medications, and for Jude’s temperature and heart rate to stay stable.
And above all, they’re asking for continued prayer — because while Jude is resting right now, the road ahead is still fragile.
