2S. This Little Girl Has Fought Pain and Surgery for Years—Now One Rare Treatment Could Change Everything

She’s just five years old.

But Lily has already been put under anesthesia 25 times.

Since she was only eight months old, a rare venous malformation has been growing inside her left cheek and lip—a tangled, dangerous mass of veins that causes pain, swelling, and constant risk as her face develops. Every few months, she has to face another round of anesthesia, another procedure, another surgery.

Nineteen treatments. Five debulking surgeries. Tonsils and adenoids removed. An emergency appendix surgery at age three. And doctors once told her family the worst words imaginable: this would be lifelong. Lily would spend decades battling the malformation, enduring one surgery after another, her childhood marked by fear, pain, and recovery.

But then came a glimmer of hope that changed everything.

Specialists in Italy reviewed Lily’s case and said something her family had never heard before: this can be fixed. A treatment called electro sclerotherapy could stop the malformation entirely—spare her from decades of procedures, spare her from pain she doesn’t deserve, and give her a chance at a normal life.

There’s a catch. The treatment is only available in Italy, and each session costs around $50,000. But Lily’s mom, Amanda, refuses to accept that her daughter should endure 25 more surgeries—or 25 more years of pain—when a solution exists. She’s fighting with everything she has to get Lily the care she needs, racing against time while her daughter grows and faces new risks every day.

Venous malformations are extraordinarily rare. Only 0.01% of people worldwide are born with them, and even fewer ever reach the specialists who can truly help. Lily is one of those rare children. She deserves a chance at life unburdened by endless medical procedures.

This little girl has already shown unimaginable strength. Every hospital visit, every recovery, every tear she’s held back or screamed out has been a testament to her resilience. And every moment Amanda spends advocating for her daughter, navigating a complex and expensive medical system, is a reminder of the power of a parent’s love.

The holidays are approaching, and while most families are counting gifts, Lily and Amanda are counting hope—prayers, support, and the possibility of a future free from constant surgeries.

This is a story of pain, but also of courage. Of a mother and daughter fighting against the odds. Of a rare opportunity that could change a life forever. And of a reminder that even in the darkest struggles, miracles are possible—and sometimes, they come from halfway across the world.

Share a prayer. Send a message. Celebrate Lily’s courage. Because every word, every thought, every gesture helps carry them forward in this fight for her life.

Lily deserves that chance. And with your support, hope can be real.