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2s.Mavryck’s Fight against Cerebral Adrenoleukodystrophy

Our sweet six-year-old nephew, Mavryck, was recently given a diagnosis no child should ever face — Cerebral X-Linked Adrenoleukodystrophy (CALD) the worst form of Adrenoleukodystrophy. It is a rare, devastating brain disease that moves faster than anyone can prepare for and is usually fatal within a few years. CALD eats away at the white matter of the brain, slowly taking a child’s abilities — their words, their balance, their hearing, their smile, the little things that make them who they are.There is no cure. Families are simply told to hold on tight and pray that treatment can slow it down in time.

In just a short amount of time, this disease has taken so much from Mavryck. And yet, he fights with a strength no six-year-old should ever have to find. His parents had to step away from work to care for him every hour of the day and night. He cannot walk, talk, eat, or play like he could in September.

They don’t know how much time they have with Mavryck, but they are determined to spend every second loving him, comforting him, and reminding him that he is never alone in this fight.

We want to help lift some of the heavy financial weight off their shoulders so they can focus on what truly matters being there for their little boy every single moment they can.

If you feel led, please pray for Mavryck and consider helping us support his parents through the hardest journey of their lives, they truly are living through every parents worst nightmare.

Give it up for my man Mavryck Dockins!

The 6-year-old from Mountain Home, Arkansas has received his latest MRI results and his rare brain disease is nearly at a halt!

Maveryck was diagnosed a few months ago with Adrenoleukodystrophy- it’s a rare and inoperable brain disease.

For weeks, Maveryck has been treated at Children’s Hospital in Little Rock, AR and he’s now responding to his sister Veralee’s bone marrow!

Mavryk’s mom Nikki sent me this amazing update last night:

“It’s the best Mav update yet!!

“Mavryck’s MRI came back showing that the disease appears to be slowing down if not halting it. His brain no longer looks like a wildfire- there is less swelling, this scan looks better than the one he had in September, no new lesions!!! That alone feels like such an answered prayer and such a miracle.

“We will know more soon as his doctor meets with neurology to look at everything more closely, but today we are holding tightly to the good news we have-and yes, we want to shout it from the rooftops.

“He will have another MRI in about three months to determine if it has fully stopped the progression.

“Thank you for every prayer, every message, and every ounce of love you’ve wrapped around our boy. Please keep praying as we head into tomorrow’s appointment.

“We truly cannot express how grateful we are to each and every one of you in Mavs Army.”

What a story!

A little boy contracts a rare brain disease and his big sister up and saves his life!

Let’s give Mavryck and Veralee a round of applause.

Because that’s how siblings are supposed to get along! 😉

You can follow Mav’s story on Facebook at #MavryckStrong

https://www.gofundme.com/f/support-mavrycks-fight-against-ald/cl/o?attribution_id=sl:af02d983-79d7-4c0f-bf64-7c05b0094fca&lang=en_US&ts=1763342606&utm_campaign=man_sharesheet_dash&utm_medium=customer&utm_source=copy_link

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